NACLIS - IPOPI

FINAL ANNOUNCEMENT
Organised by:
Endorsed by:
NACLIS 6* International Conference
on Primary Immunodeficiencies
(NACLIS6 I-Conference PID)
*National Clinical Immunology Symposium (Series 6)
“Creating Awareness for PID in South East Asia Region and Beyond”
“PID is an emerging disease in the region, early recognition and therapy is essential as most are
treatable and some even cure.”
26 – 27 October 2013
Intercontinental Hotel, Kuala Lumpur
Abstract Submission:
BEFORE 30 September 2013
Please submit your abstract via
email to [email protected]
Endorsed by:
Co-organised by:
MSAI Conference Secretariat
142, Jalan Ipoh, 3rd Floor, UMNO Selangor Building 51200 Kuala Lumpur
Tel: 603-4041 0092 / 4041 6336
Fax: 603-4042 6970 / 4042 7919
Email: [email protected]
Website: www.allergymsai.org , www.xyzofallergy.org
Supported by:
Message from the President of the Malaysian Society of Allergy and Immunology (MSAI)
Dear colleagues
It is a great privilege for the Malaysian Society of Allergy and Immunology (MSAI) to organise the 6th edition of the National
Clinical Immunology Symposium (NACLIS) with the theme “Creating Awareness of PID in South East Asia and Beyond”. The
platform for 2013 NACLIS 6 has expanded into an international and global one from when it first started in 2009. The origin of
NACLIS spawned from the need to organise educational programmes to increase awareness of Primary Immunodeficiencies
(PID) amongst the medical fraternity, both clinical and scientific branches. This was the natural decision by a group of
dedicated clinicians and scientists from both Health Ministry and Universities at 2 workshops organised by Universiti Sains
Malaysia (USM) in 2007 as the National Initiative for Primary Immunodeficiencies (NPII) which eventually became the
Malaysian Primary Immunodeficiencies Network, or MyPIN in 2009.
Since 2009 NACLIS was held once or twice a year covering various aspects of PID, including the need for a subspecialty in
Clinical Immunology and Allergy to address the need for better and optimal care of patients with PID and Allergy. Eventually,
MSAI took up the challenge of continuing discussions with the Health Ministry and Academy of Medicine Malaysia in
highlighting the importance of the subspecialty by forming a subcommittee on Training and Credentialing of Clinical Immunology. This will be a feature of
this conference with a forum to discuss pressing issues directly related to PID patient care and the subspecialty.
It is the commitment and vision to ensure the best possible standards of management for PID patients that is continually emphasied, and measures are
needed for a comprehensive approach in handling those outstanding issues in the healthcare of PID patients in Malaysia and the region. As such, we are
honoured to be able to share experiences with eminent colleagues from Europe and Asia in managing their PID patients, including administrative matters.
We are also please to have the International Patient Organisation for Primary Immunodeficiencies (IPOPI) participating in this conference to share their
expertise as the global advocate for PID patient community and MSAI intends to collaborate with IPOPI to form the Malaysian PID patient care support group.
It is envisaged key PID stakeholders including the Health Ministry and Universities will play integral roles towards realisation of optimal care for PID patients.
Together with our co-organisers UKM, UPM and USM, sponsors and the endorsement of this conference by the European Society for Immunodeficiencies
(ESID), IPOPI and World Allergy Organization (WAO), we hope all participants will benefit from the sharing of knowledge and experience for the sake of
their patients. We look forward to welcoming you to Malaysia.
Thank you.
Dr Amir Hamzah bin Dato’ Abdul Latiff
Consultant Paediatrician and Clinical Immunologist / Allergist
President
Malaysian Society of Allergy and Immunology (MSAI)
Cause for Initiating a Primary Immunodeficiencies Conference:
Primary Immunodeficiencies (PID) individually and collectively are rare. However recent epidemiologic studies suggest PID are more common
than usually thought of. Reports are filtering from South East Asia that PID do exist and constitute an emerging disease and needs to be
addressed. These disorders receive less attention compared to the other established diseases. It is estimated that there are 680,000PID patients
in Europe although from the many registries only 15,052 (2.27 %) are actually recorded; in Africa, it is estimated at 902,631 cases but only 1016
detected (0.1%) Boushifa AA et al. JACI Jan 2013. This is because awareness is lacking therefore the disease is often underreported. The possibilities that of the published reports of PID in South Asia, it is only between 0.1% - 2.27 % of its true prevalence. Published reports by Noh et al.
Med J Malaysia, Feb 2013 identified 51PID cases between 1987- 2007.
Based on the estimate by Boushifa AA the true prevalence could have been 2,157 - 51,000 in Malaysia within that period of 20 years. There is
therefore more PID cases within the community and need to be identified.
The problem is compounded by delay of diagnosis, hence delays in treatment with consequent high morbidity and mortality. It is more so in developing countries by lack of awareness in the community. As long as the gravity of the problem is not felt, effort to improve patient care would be
delayed. That would be unfortunate as specific treatment modalities are available and in some cases even cure if diagnosed early.
Malaysian Society of Allergy and Immunology with the endorsement by European Society for Immunodeficiencies (ESID), and the International
Patient Organisation of Primary Immunodeficiencies (IPOPI) attempt to create awareness of PID for the region via this conference, addressing on
the relevant contemporary issues.
The objectives of the Conference are:
•
•
•
•
•
•
To create awareness for Primary Immunodeficencies (PID) in the region of SE Asia
To appreciate the extent of the problem by sharing the experience of guest speakers with expertise in their field
To uplift quality of patient care through better diagnosis and management so as to recognize the disease earlier for early treatment
To develop training program towards creating the sub specialist with capabilities
To provide optimum diagnostic and therapeutic skills abreast with time relevant for developing countries
To engage the care givers, allied health workers, policy makers and most importantly the patients and their parents to provide
comprehensive facilities for optimum patient care and laboratory support with policies favorable to patient well being
• To form Parent-Patient support group who will then provide feedback to the professionals, policy makers, serving as advocacy
towards their needs and aspiration
Target Audience
Target Audience will include the medical fraternity (trainees, residents, specialists, public health doctors, etc), allied health care providers,
nurses, laboratory immunologists, scientists, social workers, medical educators and policy makers from Malaysia, Singapore, Thailand,
Philippines, Indonesia, China, India etc.
Programme for 6th National Clinical Immunology Symposium (NACLIS) 2013 International Conference:
Creating Awareness on Primary Immunodeficiencies (PID) in South East Asia (SEA)
Day 1
Saturday (26 October 2013)
Day 2
Sunday (27 October 2013)
08.00am
onwards
REGISTRATION
08.00am
onwards
REGISTRATION
08.30am 09.00am
Welcome address
08.00am 08.30am
PLENARY 2: Infective Complications of PID in children
Esther De Vries
09.00am 09.30am
PLENARY 1: Global Challenges for PID
Helen Chapel
08.30am 09.00am
Late Onset PID. Not just for children anymore
Helen Chapel
09.30am 10.00am
A Non Immunologist Approach to PID
Esther De Vries
09.00am 09.30am
Novel PIDs. The Asian Experience
Lau Yu Lung
10.00am 10.30am
PID in ASIA
Lau Yu Lung
09.30am 10.00am
Laboratory approach to investigation of PID
Helen Chapel
10.00am 10.30am
PID as an emerging disease in Malaysia
Lokman M Noh
10.30am 11.00am
TEA BREAK WITH EXHIBITORS
10.30am 11.00am
TEA BREAK WITH EXHIBITORS
and
11.00am 12.30pm
FREE PAPER
11.00am 11.30am
President
MSAI
and
Consultant
Pediatric
Immunologist, Pantai Medical Centre Kuala Lumpur
12.30pm 01.00pm
Antibody deficiencies
Helen Chapel
PLENARY 3: Allergic diseases in children: Immune-mediated
pathways – Towards an Integrated and Holistic approach
Ruby Pawankar
Head, Department of Paediatrics, Senior Consultant
Paediatrician & Clinical Geneticist, UKM Medical
Centre Kuala Lumpur, Malaysia
11.30am 01.00pm
01.00pm 02.00pm
Subcutaneous Immunoglobulin Therapy
Helen Chapel
by Courtesy of CSL Behring Asia Pacific Ltd
02.00pm 02.30pm
Defects of Innate Immunity
Lau Yu Lung
02.30pm 03.00pm
Combined Immunodeficiency
Esther De Vries
Forum
“Providing optimum care for PID patient in South East Asia.
Is the clinical immunologist relevant?”
Representative of:
MSAI (Amir Hamzah Abdul Latiff)
Ministry of Health Malaysia
Academy of Medicine Malaysia
Malaysian Medical Association
Malaysian Paediatric Association
Malaysian Universities
Thailand (Voravich Luangwedchakarn)
Faculty of Speakers
Prof Helen Chapel
Professor Clinical Immunology, Oxford University, UK
Dr Esther de Vries
Consultant Infectious Disease and
Jeroen Bosch Hospital, Netherland
Prof Lau Yu Lung
Johan Prevot
Prof Ruby Pawankar
Immunology,
Professor of Pediatric and Consultant
Immunologist, Hong Kong University
Pediatric
Executive Director, International Patient Organisation
for Primary Immunodeficiencies (IPOPI), UK
President World Allergy Organisation (WAO), Japan
Prof Lee Bee Wah
Consultant
Pediatric
Immunologist,
Universiry of Singapore (NUS)
National
Dr Christian Harkansee
Consultant
Pediatric
Immunologist,
University of Singapore (NUS)
National
Consultant
Pediatrics
University, Thailand
Bangkok
Dr Voravich Luangwedchakarn
Prof Lokman M Noh
Dr Amir Hamzah Abdul Latiff
Prof Zarina Abdul Latiff
Immunologist,
Consultant
Pediatric
Immunologist
Consultant Pediatrican, HUKM Malaysia
Committees
MSAI Executive Committee
2013/2014
President
Dr Amir Hamzah Abdul Latiff
Vice President
Mr SP Palaniappan
Secretary
Datin Dr Asmah Johar
Assistant Secretariat
Dr Zulkefli Hj Hussein
NACLIS 6 International Conference 2013
ORGANISING COMMITTEE
Chairman
Dr Amir Hamzah Abdul Latiff
03.00pm 03.30pm
BMT Singapore
Christian Harkensee
Secretary and Coordinator of Forum
Prof Lokman Mohd Noh
03.30pm 04.00pm
BMT Hong Kong
Lau Yu Lung
Coordinator of IPOPI Event
Dr Adli Ali
Treasurer
Dr Shahjahan Kassim
Publication Secretary
Dr Intan Hakimah Ismail
Committee Members
Datin Dr Meera Thalayasingam
Dr Noormalin Abdullah
Dr Faizah Mohamed Jamli
Dr Intan Hakimah Ismail
Dr Kent Woo Chee Keen
Asst. Secretary
Pn Siti Asma’ Ab Aziz
Co-Opted Member of Exco
Prof Lokman Mohd Noh
Auditors
Dr Adiratna Mat Ripen
Dr Mathew Mathens
Committee Members
Prof Dr Nasuruddin Abdullah
Dr Intan Juliana Abd Hamid
Dr Kamarul Azhar Mohd Razali
Dr Asrul Abdul Wahab
Dr Faizah Mohamed Jamli
Datin Dr Meera Thalayasingam
(Faculty:Helen Chapel, Esther De Vries and Lau Yu Lung)
Chairperson: Lokman M Noh
Bone Marrow Transplant (BMT) for PID.
Experiences in Asia
01.00pm 02.00pm
LUNCH
02.00pm 02.15pm
First National Malaysian PID Patient Workshop
“Forming PID patient Group in Developing Countries”
Welcome and Introduction
IPOPI team lead by Johan Prevot
International Patient Organisation for primary immunodeficies(IPOPI)
Malaysian Coordinator: Adli Ali
Sharing Experiences of PID
04.00pm 04.15pm
Netherland Experience
Esther De Vries
02.15pm 02.45pm
Immune System and PID
Helen Chapel
04.15pm 04.30pm
Thailand Experience
Voravich Luangwedchakarn
02.45pm 03.00pm
IPOPI Presentation
Johan Prevot
04.30pm 04.45pm
Singapore Experience
Lee Bee Wah
03.00pm 03.20pm
The PID Environment in Malaysia. Physician Perspective
Lokman M Noh
04.45pm 05.00pm
UK Experience
Helen Chapel
03.20pm 03.40pm
Running a patient group in Malaysia
Zarina Abdul Latiff, My Thal Club, Thalassemia
05.00pm
Refreshments
03.40pm 04.00pm
TEA BREAK WITH EXHIBITORS
04.00pm 04.30pm
The PID Environment in Malaysia - Patient Centered
04.30pm 06.00pm
Discussion and Formation of Interim Organisation of Malaysia
PID Support Group
Call For Papers
Abstract Submission Deadline : 30 September, 2013
Acceptance Notification : 5 October, 2013
Registration Deadline for Presenting Authors : 20 October, 2013
GENERAL POLICY
* All abstracts must be submitted directly to [email protected] and be received on or before 30 September, 2013. After submitting, you will
receive a confirmation email within 24 hours.
* Abstracts must be original and have not been published or presented at any congress prior to NACLIS 6-IC 2013.
* The online submission also indicates the copyright agreement to publish the abstracts in the congress abstract book in paper form and in
electronic form (CD-ROM/USB Flash Drive).
* Each abstract can only be submitted once. The same abstract cannot be submitted for consideration in other venues. All abstracts will be
presented as Posters Presentation only.
* All abstracts will be reviewed by the Scientific Program Committee of NACLIS 6-IC 2013, and review results will be announced by emailing a
notice of acceptance / rejection to corresponding authors only by 5 October, 2013.
* Instruction for poster presentation will be sent to presenting authors of the accepted abstracts. Thus, presenting authors must register and pay
the registration fees on or before 30 September, 2013.
PLEASE READ THIS THROUGHLY BEFORE PREPARING YOUR ABSTRACT
1. Only abstracts written in English will be accepted.
2. The abstract itself must contain no more than 250 words.
3. CAPITALIZE the entire title and UNDERLINE the name of author who will present the paper. Abbreviations must not be used in the title. After
the title, list the author’s names and institutional affiliations; OMIT degrees, titles, institutional appointments, address and zip code. The text
should be typed using single spacing. Do not indent the title and each paragraph.
4. Abbreviations must be defined by placing them in parentheses after the full word the first time they appear. Use numerals to indicate numbers
except when beginning sentences.
5. Nonproprietary (generic) names, written in lower-case letters, are required the first time a drug is mentioned. Proprietary names are always
capitalized.
6. Abstract will appear exactly as submitted. Abstract with smudges, errors, misspellings, incorrect hyphenations, faint typing, etc. (or not conforming to the prescribed rules) will require retyping at the author’s expense
7. CHECK ONE KEY WORD in the abstract submission form, which best categorizes the subject of the abstract.
8. The abstract will be considered and publish on the congress book after the registration complete.
9. Deadline for submission is 30 September, 2013.
Payment and Registration
Please make payment to ‘Malaysian Society of Allergy and Immunology’. All payments must be made in Malaysian Ringgit (for Malaysian
participants) and US$ for foreign participants. Foreign delegates please note that personal cheques will not be accepted. If you have any difficulty
with remittance of payment caused by your country’s foreign exchange regulations, please contact the Secretariat for advice before forwarding any
other than the acceptable form of payment.
Alternatively, remittance could be sent via Telegraphic Transfer:
Name of Bank
: Maybank Berhad
Address of Bank : Lot AG 129 & 10, Block A, Ground Floor, Plaza Pekeliling 2,
Jalan Tun Razak 50400 Kuala Lumpur, Malaysia
Account Name : Malaysian Society of Allergy and Immunology
Account Number : 514075332529
Cancellation and Refund Policy on Registration Fees
The Secretariat must be notified in writing of cancellations. Refund will be made after the Congress according to the following guidelines:
• Cancellation on and before 30 September 2013 - 50% will be refunded
• Cancellation after 30 September 2013 - no refund
For payments made directly into our bank account, please send us a photocopy of the pay-in slip as proof of payment, along with your registration
form. Form without registration fee will not be accepted for registration.
6th National Clinical Immunology Symposium (Naclis) 2013
International Conference
CREATING AWARENESS ON PRIMARY IMMUNODEFICIENCIES (PID) IN SOUTH EAST ASIA (SEA)
26th - 27th October 2013
InterContinental Hotel
165, Jalan Ampang, 50450 Kuala Lumpur, Malaysia
REGISTRATION FORM
Title:
Prof
Dato
Dr
Mr
Mrs
Miss
MSAI Member: Yes / No
Full Name :
Mailing address :
Company/Organisation/Institute :
Office Telephone :
Facsimile :
E-mail :
Speciality :
REGISTRATION FEES
Before or on 30th
September 2013
After 30th
September 2013
*MSAI Members
RM 700
RM 900
Non Members
RM 900
RM 1200
US $300
US $400
Foreign Participants
MSAI MEMBERSHIP
Renewal of Annual Subscription
Amount
Cancellation and refund
Policy on Registration Fees
The Secretariat must be
notified in writing of
cancellations. Refund will be
made after the congress
according to the following
guidelines:
RM 50
NEW MEMBERSHIP (FOR MSAI)
Ordinary : (Entrance Fee + Subscription)
Cancellation on or before 30th
September, 2013 - 50% will
be refunded
RM 150
Life (One Time Payment-No Entrance Fee Required
RM 1000
Cancellation after 30th
September, 2013 - No refund
TOTAL
MODE OF PAYMENT
CASH / CHEQUE / BANK DRAFT / TELEGRAPHIC TRANSFER
*Only MSAI Members
who have paid their
subscription to-date are
eligible for this special
registration fee.
If you make payment direct to our bank, please fax ‘proof’ of payment. Do not send cash in the post.
Cheques should be made in favour of:
“MALAYSIAN SOCIETY OF ALLERGY AND IMMUNOLOGY”
Cheque No.
If you are making payment via telegraphic transfer,
please remit as follows:
Name of Bank
Address of Bank
Account Name
Account Number
Swift Code
: Maybank Berhad
: Lot AG 129 & 10, Block A, Ground Floor, Plaza Pekeliling 2,
Jalan Tun Razak, 50400 Kuala Lumpur, Malaysia
: Malaysian Society of Allergy and Immunology
: 514 0 7 5 3 3 2 5 2 9
: MBB EMYKL 514075332529
Signature of Participant
Date:
Please make all payment to “MALAYSIAN SOCIETY OF ALLERGY AND IMMUNOLOGY”
Please send this completed form and enclosed payment to:
MSAI Congress Secretariat
142, Jalan Ipoh 3rd Floor, UMNO Selangor Building, 51200 Kuala Lumpur
Tel: 603-4041 0092, 603-4041 6336, 603-4042 7919
Fax: 603-4042 7919, 603-4042 6970, 603-4041 4990
E-mail: [email protected]
Website: www.allergymsai.org
For more information on Allergy visit: www.xyzofallergy.org
For Accommodation:
Please contact InterContinental Hotel - Tan Ian Lee (Winter)
Tel: +60 3 2782 6323 Mobile: +6012 331 3453 Fax: +60 3 2164 4914
Email: [email protected]
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