NACLIS - IPOPI
Transkript
NACLIS - IPOPI
FINAL ANNOUNCEMENT Organised by: Endorsed by: NACLIS 6* International Conference on Primary Immunodeficiencies (NACLIS6 I-Conference PID) *National Clinical Immunology Symposium (Series 6) “Creating Awareness for PID in South East Asia Region and Beyond” “PID is an emerging disease in the region, early recognition and therapy is essential as most are treatable and some even cure.” 26 – 27 October 2013 Intercontinental Hotel, Kuala Lumpur Abstract Submission: BEFORE 30 September 2013 Please submit your abstract via email to [email protected] Endorsed by: Co-organised by: MSAI Conference Secretariat 142, Jalan Ipoh, 3rd Floor, UMNO Selangor Building 51200 Kuala Lumpur Tel: 603-4041 0092 / 4041 6336 Fax: 603-4042 6970 / 4042 7919 Email: [email protected] Website: www.allergymsai.org , www.xyzofallergy.org Supported by: Message from the President of the Malaysian Society of Allergy and Immunology (MSAI) Dear colleagues It is a great privilege for the Malaysian Society of Allergy and Immunology (MSAI) to organise the 6th edition of the National Clinical Immunology Symposium (NACLIS) with the theme “Creating Awareness of PID in South East Asia and Beyond”. The platform for 2013 NACLIS 6 has expanded into an international and global one from when it first started in 2009. The origin of NACLIS spawned from the need to organise educational programmes to increase awareness of Primary Immunodeficiencies (PID) amongst the medical fraternity, both clinical and scientific branches. This was the natural decision by a group of dedicated clinicians and scientists from both Health Ministry and Universities at 2 workshops organised by Universiti Sains Malaysia (USM) in 2007 as the National Initiative for Primary Immunodeficiencies (NPII) which eventually became the Malaysian Primary Immunodeficiencies Network, or MyPIN in 2009. Since 2009 NACLIS was held once or twice a year covering various aspects of PID, including the need for a subspecialty in Clinical Immunology and Allergy to address the need for better and optimal care of patients with PID and Allergy. Eventually, MSAI took up the challenge of continuing discussions with the Health Ministry and Academy of Medicine Malaysia in highlighting the importance of the subspecialty by forming a subcommittee on Training and Credentialing of Clinical Immunology. This will be a feature of this conference with a forum to discuss pressing issues directly related to PID patient care and the subspecialty. It is the commitment and vision to ensure the best possible standards of management for PID patients that is continually emphasied, and measures are needed for a comprehensive approach in handling those outstanding issues in the healthcare of PID patients in Malaysia and the region. As such, we are honoured to be able to share experiences with eminent colleagues from Europe and Asia in managing their PID patients, including administrative matters. We are also please to have the International Patient Organisation for Primary Immunodeficiencies (IPOPI) participating in this conference to share their expertise as the global advocate for PID patient community and MSAI intends to collaborate with IPOPI to form the Malaysian PID patient care support group. It is envisaged key PID stakeholders including the Health Ministry and Universities will play integral roles towards realisation of optimal care for PID patients. Together with our co-organisers UKM, UPM and USM, sponsors and the endorsement of this conference by the European Society for Immunodeficiencies (ESID), IPOPI and World Allergy Organization (WAO), we hope all participants will benefit from the sharing of knowledge and experience for the sake of their patients. We look forward to welcoming you to Malaysia. Thank you. Dr Amir Hamzah bin Dato’ Abdul Latiff Consultant Paediatrician and Clinical Immunologist / Allergist President Malaysian Society of Allergy and Immunology (MSAI) Cause for Initiating a Primary Immunodeficiencies Conference: Primary Immunodeficiencies (PID) individually and collectively are rare. However recent epidemiologic studies suggest PID are more common than usually thought of. Reports are filtering from South East Asia that PID do exist and constitute an emerging disease and needs to be addressed. These disorders receive less attention compared to the other established diseases. It is estimated that there are 680,000PID patients in Europe although from the many registries only 15,052 (2.27 %) are actually recorded; in Africa, it is estimated at 902,631 cases but only 1016 detected (0.1%) Boushifa AA et al. JACI Jan 2013. This is because awareness is lacking therefore the disease is often underreported. The possibilities that of the published reports of PID in South Asia, it is only between 0.1% - 2.27 % of its true prevalence. Published reports by Noh et al. Med J Malaysia, Feb 2013 identified 51PID cases between 1987- 2007. Based on the estimate by Boushifa AA the true prevalence could have been 2,157 - 51,000 in Malaysia within that period of 20 years. There is therefore more PID cases within the community and need to be identified. The problem is compounded by delay of diagnosis, hence delays in treatment with consequent high morbidity and mortality. It is more so in developing countries by lack of awareness in the community. As long as the gravity of the problem is not felt, effort to improve patient care would be delayed. That would be unfortunate as specific treatment modalities are available and in some cases even cure if diagnosed early. Malaysian Society of Allergy and Immunology with the endorsement by European Society for Immunodeficiencies (ESID), and the International Patient Organisation of Primary Immunodeficiencies (IPOPI) attempt to create awareness of PID for the region via this conference, addressing on the relevant contemporary issues. The objectives of the Conference are: • • • • • • To create awareness for Primary Immunodeficencies (PID) in the region of SE Asia To appreciate the extent of the problem by sharing the experience of guest speakers with expertise in their field To uplift quality of patient care through better diagnosis and management so as to recognize the disease earlier for early treatment To develop training program towards creating the sub specialist with capabilities To provide optimum diagnostic and therapeutic skills abreast with time relevant for developing countries To engage the care givers, allied health workers, policy makers and most importantly the patients and their parents to provide comprehensive facilities for optimum patient care and laboratory support with policies favorable to patient well being • To form Parent-Patient support group who will then provide feedback to the professionals, policy makers, serving as advocacy towards their needs and aspiration Target Audience Target Audience will include the medical fraternity (trainees, residents, specialists, public health doctors, etc), allied health care providers, nurses, laboratory immunologists, scientists, social workers, medical educators and policy makers from Malaysia, Singapore, Thailand, Philippines, Indonesia, China, India etc. Programme for 6th National Clinical Immunology Symposium (NACLIS) 2013 International Conference: Creating Awareness on Primary Immunodeficiencies (PID) in South East Asia (SEA) Day 1 Saturday (26 October 2013) Day 2 Sunday (27 October 2013) 08.00am onwards REGISTRATION 08.00am onwards REGISTRATION 08.30am 09.00am Welcome address 08.00am 08.30am PLENARY 2: Infective Complications of PID in children Esther De Vries 09.00am 09.30am PLENARY 1: Global Challenges for PID Helen Chapel 08.30am 09.00am Late Onset PID. Not just for children anymore Helen Chapel 09.30am 10.00am A Non Immunologist Approach to PID Esther De Vries 09.00am 09.30am Novel PIDs. The Asian Experience Lau Yu Lung 10.00am 10.30am PID in ASIA Lau Yu Lung 09.30am 10.00am Laboratory approach to investigation of PID Helen Chapel 10.00am 10.30am PID as an emerging disease in Malaysia Lokman M Noh 10.30am 11.00am TEA BREAK WITH EXHIBITORS 10.30am 11.00am TEA BREAK WITH EXHIBITORS and 11.00am 12.30pm FREE PAPER 11.00am 11.30am President MSAI and Consultant Pediatric Immunologist, Pantai Medical Centre Kuala Lumpur 12.30pm 01.00pm Antibody deficiencies Helen Chapel PLENARY 3: Allergic diseases in children: Immune-mediated pathways – Towards an Integrated and Holistic approach Ruby Pawankar Head, Department of Paediatrics, Senior Consultant Paediatrician & Clinical Geneticist, UKM Medical Centre Kuala Lumpur, Malaysia 11.30am 01.00pm 01.00pm 02.00pm Subcutaneous Immunoglobulin Therapy Helen Chapel by Courtesy of CSL Behring Asia Pacific Ltd 02.00pm 02.30pm Defects of Innate Immunity Lau Yu Lung 02.30pm 03.00pm Combined Immunodeficiency Esther De Vries Forum “Providing optimum care for PID patient in South East Asia. Is the clinical immunologist relevant?” Representative of: MSAI (Amir Hamzah Abdul Latiff) Ministry of Health Malaysia Academy of Medicine Malaysia Malaysian Medical Association Malaysian Paediatric Association Malaysian Universities Thailand (Voravich Luangwedchakarn) Faculty of Speakers Prof Helen Chapel Professor Clinical Immunology, Oxford University, UK Dr Esther de Vries Consultant Infectious Disease and Jeroen Bosch Hospital, Netherland Prof Lau Yu Lung Johan Prevot Prof Ruby Pawankar Immunology, Professor of Pediatric and Consultant Immunologist, Hong Kong University Pediatric Executive Director, International Patient Organisation for Primary Immunodeficiencies (IPOPI), UK President World Allergy Organisation (WAO), Japan Prof Lee Bee Wah Consultant Pediatric Immunologist, Universiry of Singapore (NUS) National Dr Christian Harkansee Consultant Pediatric Immunologist, University of Singapore (NUS) National Consultant Pediatrics University, Thailand Bangkok Dr Voravich Luangwedchakarn Prof Lokman M Noh Dr Amir Hamzah Abdul Latiff Prof Zarina Abdul Latiff Immunologist, Consultant Pediatric Immunologist Consultant Pediatrican, HUKM Malaysia Committees MSAI Executive Committee 2013/2014 President Dr Amir Hamzah Abdul Latiff Vice President Mr SP Palaniappan Secretary Datin Dr Asmah Johar Assistant Secretariat Dr Zulkefli Hj Hussein NACLIS 6 International Conference 2013 ORGANISING COMMITTEE Chairman Dr Amir Hamzah Abdul Latiff 03.00pm 03.30pm BMT Singapore Christian Harkensee Secretary and Coordinator of Forum Prof Lokman Mohd Noh 03.30pm 04.00pm BMT Hong Kong Lau Yu Lung Coordinator of IPOPI Event Dr Adli Ali Treasurer Dr Shahjahan Kassim Publication Secretary Dr Intan Hakimah Ismail Committee Members Datin Dr Meera Thalayasingam Dr Noormalin Abdullah Dr Faizah Mohamed Jamli Dr Intan Hakimah Ismail Dr Kent Woo Chee Keen Asst. Secretary Pn Siti Asma’ Ab Aziz Co-Opted Member of Exco Prof Lokman Mohd Noh Auditors Dr Adiratna Mat Ripen Dr Mathew Mathens Committee Members Prof Dr Nasuruddin Abdullah Dr Intan Juliana Abd Hamid Dr Kamarul Azhar Mohd Razali Dr Asrul Abdul Wahab Dr Faizah Mohamed Jamli Datin Dr Meera Thalayasingam (Faculty:Helen Chapel, Esther De Vries and Lau Yu Lung) Chairperson: Lokman M Noh Bone Marrow Transplant (BMT) for PID. Experiences in Asia 01.00pm 02.00pm LUNCH 02.00pm 02.15pm First National Malaysian PID Patient Workshop “Forming PID patient Group in Developing Countries” Welcome and Introduction IPOPI team lead by Johan Prevot International Patient Organisation for primary immunodeficies(IPOPI) Malaysian Coordinator: Adli Ali Sharing Experiences of PID 04.00pm 04.15pm Netherland Experience Esther De Vries 02.15pm 02.45pm Immune System and PID Helen Chapel 04.15pm 04.30pm Thailand Experience Voravich Luangwedchakarn 02.45pm 03.00pm IPOPI Presentation Johan Prevot 04.30pm 04.45pm Singapore Experience Lee Bee Wah 03.00pm 03.20pm The PID Environment in Malaysia. Physician Perspective Lokman M Noh 04.45pm 05.00pm UK Experience Helen Chapel 03.20pm 03.40pm Running a patient group in Malaysia Zarina Abdul Latiff, My Thal Club, Thalassemia 05.00pm Refreshments 03.40pm 04.00pm TEA BREAK WITH EXHIBITORS 04.00pm 04.30pm The PID Environment in Malaysia - Patient Centered 04.30pm 06.00pm Discussion and Formation of Interim Organisation of Malaysia PID Support Group Call For Papers Abstract Submission Deadline : 30 September, 2013 Acceptance Notification : 5 October, 2013 Registration Deadline for Presenting Authors : 20 October, 2013 GENERAL POLICY * All abstracts must be submitted directly to [email protected] and be received on or before 30 September, 2013. After submitting, you will receive a confirmation email within 24 hours. * Abstracts must be original and have not been published or presented at any congress prior to NACLIS 6-IC 2013. * The online submission also indicates the copyright agreement to publish the abstracts in the congress abstract book in paper form and in electronic form (CD-ROM/USB Flash Drive). * Each abstract can only be submitted once. The same abstract cannot be submitted for consideration in other venues. All abstracts will be presented as Posters Presentation only. * All abstracts will be reviewed by the Scientific Program Committee of NACLIS 6-IC 2013, and review results will be announced by emailing a notice of acceptance / rejection to corresponding authors only by 5 October, 2013. * Instruction for poster presentation will be sent to presenting authors of the accepted abstracts. Thus, presenting authors must register and pay the registration fees on or before 30 September, 2013. PLEASE READ THIS THROUGHLY BEFORE PREPARING YOUR ABSTRACT 1. Only abstracts written in English will be accepted. 2. The abstract itself must contain no more than 250 words. 3. CAPITALIZE the entire title and UNDERLINE the name of author who will present the paper. Abbreviations must not be used in the title. After the title, list the author’s names and institutional affiliations; OMIT degrees, titles, institutional appointments, address and zip code. The text should be typed using single spacing. Do not indent the title and each paragraph. 4. Abbreviations must be defined by placing them in parentheses after the full word the first time they appear. Use numerals to indicate numbers except when beginning sentences. 5. Nonproprietary (generic) names, written in lower-case letters, are required the first time a drug is mentioned. Proprietary names are always capitalized. 6. Abstract will appear exactly as submitted. Abstract with smudges, errors, misspellings, incorrect hyphenations, faint typing, etc. (or not conforming to the prescribed rules) will require retyping at the author’s expense 7. CHECK ONE KEY WORD in the abstract submission form, which best categorizes the subject of the abstract. 8. The abstract will be considered and publish on the congress book after the registration complete. 9. Deadline for submission is 30 September, 2013. Payment and Registration Please make payment to ‘Malaysian Society of Allergy and Immunology’. All payments must be made in Malaysian Ringgit (for Malaysian participants) and US$ for foreign participants. Foreign delegates please note that personal cheques will not be accepted. If you have any difficulty with remittance of payment caused by your country’s foreign exchange regulations, please contact the Secretariat for advice before forwarding any other than the acceptable form of payment. Alternatively, remittance could be sent via Telegraphic Transfer: Name of Bank : Maybank Berhad Address of Bank : Lot AG 129 & 10, Block A, Ground Floor, Plaza Pekeliling 2, Jalan Tun Razak 50400 Kuala Lumpur, Malaysia Account Name : Malaysian Society of Allergy and Immunology Account Number : 514075332529 Cancellation and Refund Policy on Registration Fees The Secretariat must be notified in writing of cancellations. Refund will be made after the Congress according to the following guidelines: • Cancellation on and before 30 September 2013 - 50% will be refunded • Cancellation after 30 September 2013 - no refund For payments made directly into our bank account, please send us a photocopy of the pay-in slip as proof of payment, along with your registration form. Form without registration fee will not be accepted for registration. 6th National Clinical Immunology Symposium (Naclis) 2013 International Conference CREATING AWARENESS ON PRIMARY IMMUNODEFICIENCIES (PID) IN SOUTH EAST ASIA (SEA) 26th - 27th October 2013 InterContinental Hotel 165, Jalan Ampang, 50450 Kuala Lumpur, Malaysia REGISTRATION FORM Title: Prof Dato Dr Mr Mrs Miss MSAI Member: Yes / No Full Name : Mailing address : Company/Organisation/Institute : Office Telephone : Facsimile : E-mail : Speciality : REGISTRATION FEES Before or on 30th September 2013 After 30th September 2013 *MSAI Members RM 700 RM 900 Non Members RM 900 RM 1200 US $300 US $400 Foreign Participants MSAI MEMBERSHIP Renewal of Annual Subscription Amount Cancellation and refund Policy on Registration Fees The Secretariat must be notified in writing of cancellations. Refund will be made after the congress according to the following guidelines: RM 50 NEW MEMBERSHIP (FOR MSAI) Ordinary : (Entrance Fee + Subscription) Cancellation on or before 30th September, 2013 - 50% will be refunded RM 150 Life (One Time Payment-No Entrance Fee Required RM 1000 Cancellation after 30th September, 2013 - No refund TOTAL MODE OF PAYMENT CASH / CHEQUE / BANK DRAFT / TELEGRAPHIC TRANSFER *Only MSAI Members who have paid their subscription to-date are eligible for this special registration fee. If you make payment direct to our bank, please fax ‘proof’ of payment. Do not send cash in the post. Cheques should be made in favour of: “MALAYSIAN SOCIETY OF ALLERGY AND IMMUNOLOGY” Cheque No. If you are making payment via telegraphic transfer, please remit as follows: Name of Bank Address of Bank Account Name Account Number Swift Code : Maybank Berhad : Lot AG 129 & 10, Block A, Ground Floor, Plaza Pekeliling 2, Jalan Tun Razak, 50400 Kuala Lumpur, Malaysia : Malaysian Society of Allergy and Immunology : 514 0 7 5 3 3 2 5 2 9 : MBB EMYKL 514075332529 Signature of Participant Date: Please make all payment to “MALAYSIAN SOCIETY OF ALLERGY AND IMMUNOLOGY” Please send this completed form and enclosed payment to: MSAI Congress Secretariat 142, Jalan Ipoh 3rd Floor, UMNO Selangor Building, 51200 Kuala Lumpur Tel: 603-4041 0092, 603-4041 6336, 603-4042 7919 Fax: 603-4042 7919, 603-4042 6970, 603-4041 4990 E-mail: [email protected] Website: www.allergymsai.org For more information on Allergy visit: www.xyzofallergy.org For Accommodation: Please contact InterContinental Hotel - Tan Ian Lee (Winter) Tel: +60 3 2782 6323 Mobile: +6012 331 3453 Fax: +60 3 2164 4914 Email: [email protected] FOR SECRETARIAT USE ONLY Date Received: TOTAL AMOUNT: Receipt No: Registration No: USD RM